Myeloma Tool Kit
Myeloma Made Simple
Understanding the Language of Myeloma
Myeloma is a complicated disease, but the language that describes it doesn’t have to be. Here is a list of words and phrases commonly used in discussions about myeloma.
Early Signs of Myeloma
This Tip Card covers early diagnosis and warning signs of multiple myeloma.
Have You Been Diagnosed with Myeloma?
Multiple myeloma is a highly treatable disease. Many patients live long and productive lives after diagnosis.
Myeloma Treatment Discussion Tool
This tool was developed in collaboration with myeloma patients and caregivers, leaders of myeloma support groups, and the IMF Nurse Leadership Board. Discuss this tool with your treatment team and healthcare providers.
To make good decisions about your care with your health-care team, learn as much as you can about myeloma and its treatments.
A comprehensive list of caregiver support and other helpful resources especially for families and caregivers.
Drug Reimbursement Information and Assistance
List of pharma, government and other resources regarding drug reimbursement information and assistance
Find a Support Group
Support groups bring together myeloma patients, caregivers, family members & friends. Patients involved in a support group experience more positive outcomes due to their understanding of treatment options and ability to have key conversations with their health-care team.
The financial challenges that accompany myeloma can be overwhelming. Although there are many resources available, knowing where to begin is the first step. Let Atrium Health and the IMF help with this simple tool to get you started!
A Day in the Life –
You’re listening to A Day in The Life podcast brought to you by the International Myeloma Foundation. We hope this podcast provides messages of hope and resilience for those in the myeloma community and beyond.
Today, we are talking to Thomas Goode, who was diagnosed with myeloma in 2005, at the young age of 34. Thomas shares his in-depth story of diagnosis, treatments, and multiple relapses in the audio podcast, Myeloma Voices, also brought to you by the International Myeloma Foundation.
A Day in the Life –
The “A Day in the Life” podcast from the International Myeloma Foundation features messages of hope and resilience for myeloma patients, caregivers, and their loved ones. Today we’re talking to Robert Pugh. Robert is a resident of Charlotte, North Carolina. He is a retired businessman, pastor, and a father of four grown children. He is also a myeloma patient who helps other patients self-advocate for their care. We invited him on today to learn how he remains positive when facing challenges.
In the News
Robert Pugh was featured in the news recently raising awareness about multiple myeloma and disparities in healthcare specially in the African-American community.
Disparities in Treatment
My experiences over the years as a support group leader have been that most leaders are experiencing similar challenges, looking for ways to diversify group participation and ensure that we all live well with myeloma. Much like the health-care system, we have to better understand barriers to participation.
Patient advocate Yelak Biru shares his story
Diagnosed at the young age of 25 with stage III multiple myeloma, Yelak Biru is a patient turned myeloma research advocate. Working with a team of medical practitioners and educating himself through support group leadership, information resources, advocacy sites, social media, and the IMF, Yelak has successfully integrated myeloma to his life for over two decades.